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Anemia, Hemolytic, Congenital - 25 Studies Found

Status Study
Recruiting Study Name: SCD-PROMIS: A Software Platform to Enhance Self-efficacy and Patient-provider Engagement for Patients With Sickle Cell Pain
Condition: Sickle Cell Disease Anemia Anemia, Hemolytic
Date: 2016-12-22
Interventions: Other: PROMIS for Pain Management App At hospital discharge, the investigators will collect baseline sur
Recruiting Study Name: Fetal Hemoglobin Induction Treatment Metformin
Condition: Sickle Cell Anemia Sickle Cell Disease Hemoglobin Disorder
Date: 2016-12-01
Interventions: Drug: Metformin Subjects will be started at a dose of 500
Recruiting Study Name: The Congenital Dyserythropoietic Anemia Registry (CDAR)
Condition: Congenital Dyserythropoietic Anemia (CDA)
Date: 2016-10-04
Recruiting Study Name: Fat and Sugar Metabolism During Exercise in Patients With Metabolic Myopathy
Condition: Metabolism, Inborn Errors Lipid Metabolism, Inborn Errors
Date: 2015-12-09
Interventions: Other: Sugar 10 minutes before exercising, the subjects are given a bolus of glucose solution 0.2 g/kg i
Enrolling by invitation Study Name: Longterm Follow-up of Subjects With Hemoglobinopathies Treated With Ex Vivo Gene Therapy
Condition: Beta-Thalassemia Sickle Cell Disease
Date: 2015-11-30
Interventions: Other: Safety and efficacy assessments Vector copy number (VCN) measurement, safety evaluations, disease
Active, not recruiting Study Name: A Study of AG-348 in Adult Patients With Pyruvate Kinase Deficiency
Condition: Pyruvate Kinase Deficiency
Date: 2015-06-10
Interventions: Drug: AG-348 A range of doses of AG-348 will be tested based on the assessment of safety, tolerability a
Recruiting Study Name: HSCT For Patients With High Risk Hemoglobinopathies Using Reduced Intensity
Condition: Sickle Cell Disease Beta Thalassemia-Major
Date: 2015-04-24
Interventions: Drug: alemtuzumab (Campath IH)
Recruiting Study Name: Evaluation of the AMICUS RBCx System in Sickle Cell Patients
Condition: Sickle Cell Anemia
Date: 2015-02-06
Interventions: Device: Amicus Red Cell Exchange in SCD patients Each patient will be treated with one RBCx procedure us
Recruiting Study Name: Allogeneic SCT of CordIn™, in Patients With Hemoglobinopathies
Condition: Sickle Cell Disease Thalassemia
Date: 2015-01-21
Interventions: Biological: CordIn CordIn™ is a cryopreserved stem/progenitor cell-based product of purified CD133
Recruiting Study Name: Sickle Cell Hemoglobinopathies and Bone Health
Condition: Sickle Cell Disease Sickle Cell Trait
Date: 2014-12-01
Interventions: Other: Healthy volunteers without SCT
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