Status | Study |
Recruiting |
Study Name: Trial of Sirolimus for Cognitive Impairment in Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2017-02-02 Interventions: Drug: Sirolimus Low dose oral sirolimus Other Names: |
Active, not recruiting |
Study Name: Cannabidiol Expanded Access Study in Medically Refractory Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2015-01-05 Interventions: Drug: Cannabidiol Initiation of treatment will begin with |
Withdrawn |
Study Name: Adjunctive Everolimus (RAD 001) Therapy for Epilepsy in Children With Sturge-Weber Syndrome (SWS) Condition: Sturge Weber Syndrome Date: 2013-11-15 Interventions: Drug: Everolimus Afinitor tablets will be administered at a starting dosage of 5 mg/ m2/ day, dosed once |
Recruiting |
Study Name: Cortical Recording and Stimulating Array Brain-Machine Interface Condition: Tetraplegia Spinal Cord Injury Brain Date: 2013-07-03 Interventions: Device: Implantation of CRS Arrays Two Blackrock Microsystems CRS Arrays will be implanted in the motor |
Completed |
Study Name: Efficacy and Safety Study of Topical Rapamycin Associated With Pulsed Dye Laser in Patients With Sturge-Weber Syndrome Condition: Sturge- Weber Syndrome Date: 2013-04-18 Interventions: Drug: Drug: Topical Rapamycin After signing this consent f |
Recruiting |
Study Name: Treatment of Port-wine Mark in Sturge-Weber Syndrome Using Topical Timolol Condition: Sturge Weber Syndrome Port-wine Mark Date: 2012-02-11 Interventions: Drug: Timolol 0.5% timolol mal |
Recruiting |
Study Name: Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2011-08-29 |
Completed |
Study Name: ECoG Direct Brain Interface for Individuals With Upper Limb Paralysis Condition: Tetraplegia Spinal Cord Injury Brachial Plexus Injury Date: 2011-07-11 Interventions: Device: Implantation of ECoG sensors on the brain surface One ECoG sensor will be implanted over the mot |
Active, not recruiting |
Study Name: French National Cohort of Children With Port Wine Stain Condition: Port Wine Stain Klippel Trenaunay Syndrome Parkes Weber Sy Date: 2011-05-31 Interventions: Genetic: search for polymorphisms of RASA1 gene Blood sample ( 5 mL) at tne inclusion of the child DNA e |
Completed |
Study Name: Biomarker Development in Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2011-04-28 |