| Status | Study |
| Recruiting |
Study Name: Trial of Sirolimus for Cognitive Impairment in Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2017-02-02 Interventions: Drug: Sirolimus Low dose oral sirolimus Other Names: |
| Recruiting |
Study Name: Lymphatic Anomalies Registry Condition: Lymphatic Malformation Generalized Lymphatic Anomaly (GLA) Date: 2015-03-17 |
| Active, not recruiting |
Study Name: Cannabidiol Expanded Access Study in Medically Refractory Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2015-01-05 Interventions: Drug: Cannabidiol Initiation of treatment will begin with |
| Withdrawn |
Study Name: Adjunctive Everolimus (RAD 001) Therapy for Epilepsy in Children With Sturge-Weber Syndrome (SWS) Condition: Sturge Weber Syndrome Date: 2013-11-15 Interventions: Drug: Everolimus Afinitor tablets will be administered at a starting dosage of 5 mg/ m2/ day, dosed once |
| Completed |
Study Name: Efficacy and Safety Study of Topical Rapamycin Associated With Pulsed Dye Laser in Patients With Sturge-Weber Syndrome Condition: Sturge- Weber Syndrome Date: 2013-04-18 Interventions: Drug: Drug: Topical Rapamycin After signing this consent f |
| Recruiting |
Study Name: Institutional Registry of Haemorrhagic Hereditary Telangiectasia Condition: Haemorrhagic Hereditary Telangiectasia Date: 2013-01-03 |
| Recruiting |
Study Name: Treatment of Port-wine Mark in Sturge-Weber Syndrome Using Topical Timolol Condition: Sturge Weber Syndrome Port-wine Mark Date: 2012-02-11 Interventions: Drug: Timolol 0.5% timolol mal |
| Recruiting |
Study Name: Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2011-08-29 |
| Active, not recruiting |
Study Name: French National Cohort of Children With Port Wine Stain Condition: Port Wine Stain Klippel Trenaunay Syndrome Date: 2011-05-31 Interventions: Genetic: search for polymorphisms of RASA1 gene Blood sample ( 5 mL) at tne inclusion of the child DNA e |
| Completed |
Study Name: Biomarker Development in Sturge-Weber Syndrome Condition: Sturge-Weber Syndrome Date: 2011-04-28 |