Disease: Alpha-1, 4 Glucosidase Deficiency

Resources

CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk

Association for Glycogen Storage Disease
P.O. Box 896
Durant, IA 52747
USA
Tel: (563)514-4022
Fax: (563)514-4022
Email: [email protected]
Internet: http://www.agsdus.org

Vaincre Les Maladies Lysosomales
2 Ter Avenue
Massy, 91300
France
Tel: 0169754030
Fax: 0160111583
Email: [email protected]
Internet: http://www.vml-asso.org

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: [email protected]
Internet: http://www.mda.org/

NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: [email protected]
Internet: http://www2.niddk.nih.gov/

Acid Maltase Deficiency Association, Inc.
P.O. Box 700248
San Antonio, TX 78270-0248
Tel: (210)494-6144
Fax: (210)490-7161
Email: [email protected]
Internet: http://www.amda-pompe.org

Association for Glycogen Storage Disease (UK) Ltd
Old Hambledon Racecourse
Sheardley Lane, Droxford
Hampshire, SO32 3QY
United Kingdom
Tel: 03001232790
Email: [email protected]
Internet: http://www.agsd.org.uk

Children's Cardiomyopathy Foundation
PO Box 547
Tenafly, NJ 07670
USA
Tel: (866)808-2873
Fax: (201)227-7016
Email: [email protected]
Internet: http://www.childrenscardiomyopathy.org

Belgian Association for Metabolic Diseases
Alice Nahonlann 7
Melsele, 9120
Belgium
Tel: 0498701503
Fax: 037754839
Email: [email protected]
Internet: http://www.boks.be/site/index.php/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Instituto de Errores Innatos del Metabolismo
Carrera 7 No 40 - 62
Bogota,
Colombia
Tel: 5713208320
Email: [email protected]
Internet: http://www.javeriana.edu.co/ieim/programas_ieim.htm

United Pompe Foundation
5100 N. Sixth Street #119
Fresno, CA 93710
Tel: (559)227-1898
Fax: (559)227-1898
Email: [email protected]
Internet: http://www.unitedpompe.com

Hide & Seek Foundation for Lysosomal Disease Research
6475 East Pacific Coast Highway Suite 466
Long Beach, CA 90803
Tel: (877)621-1122
Fax: (866)215-8850
Email: [email protected]
Internet: http://www.hideandseek.org

Proyecto Pide un Deseo México, i.a.p.
Altadena #59-501 col. Napoles
delegacion Benito Juarez
03810 Mexico D.F.
Tel: 55 5543-2447
Fax: 55-5543-5450
Email: [email protected]
Internet: http://www.pideundeseo.org

Source: http://www.webmd.com

Disorder Subdivisions

  • infantile onset Pompe disease
  • late onset Pompe disease

Source: http://www.webmd.com

Define Common Diseases

Welcome to WebHealthNetwork, here you can find information, definitaions and treatement options for most common diseases, sicknesses, illnesses and medical conditions. Find what diseases you have quick and now.