Resources
Diamond Blackfan Anemia Registry
Schneider Children's Hospital,
269-01 76th Avenue, Rm 255
New Hyde Park, NY 11040
USA
Tel: (718)470-3610
Fax: (718)470-4321
Tel: (888)884-3227
Email: [email protected]
Internet: http://dbar.org/
DBA-UK
71-73 Main Street
Palterton
Chesterfield, S44 6UR
United Kingdom
Tel: 08450941548
Email: [email protected]
Internet: http://www.diamondblackfan.org.uk
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Source: http://www.webmd.com