Resources
Dysautonomia Foundation, Inc.
315 W 39th St
Suite 701
New York, NY 10018
USA
Tel: (212)279-1066
Fax: (212)279-2066
Email: [email protected]
Internet: http://www.familialdysautonomia.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Dysautonomia Foundation, Inc., Toronto Chapter
250 Franklin Avenue
Thornhill
Ontario, L4J 7K5
Canada
Tel: 9058827725
Fax: 9057647752
Internet: http://www.familialdysautonomia.org
National Dysautonomia Research Foundation
PO Box 301
Red Wing, MN 55066-0102
Tel: (651)327-0367
Email: [email protected]
Internet: http://www.ndrf.org
Familial Dysautonomia Hope Foundation
121 S. Estes Dr., Suite 205D
Chapell Hill, NC 27514
USA
Tel: (919)969-1414
Email: [email protected]
Internet: http://www.fdhope.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Familial Dysautonomia Now Foundation
1170 Green Knolls Drive
Buffalo Grove, IL 60089
Tel: (847)913-0455
Fax: (847)913-8589
Email: [email protected]
Internet: http://www.fdnow.org
Dysautonomia Youth Network of America, Inc.
1301 Greengate Court
Waldorf, OR 20601
Tel: (301)705-6995
Fax: (301)638-3962
Email: [email protected]
Internet: http://www.dynakids.org
Source: http://www.webmd.com