Resources
Dystrophic Epidermolysis Bullosa Research Association of America, Inc. (DEBRA)
16 East 41st Street
3rd Floor
New York, NY 10017
Tel: (212)868-1573
Fax: (212)868-9296
Tel: (866)332-7276
Email: [email protected]
Internet: http://www.debra.org
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: [email protected]
Internet: http://www.niams.nih.gov/
University of Pennsylvania Dermatology Clinic
Dermatology Clinic
34th and Spruce Streets
Philadelphia, PA 19104
Tel: (215)662-2737
Tel: (800)789-7366
Internet: http://www.uphs.upenn.edu/dermatol/
Stevens Johnson Syndrome Foundation and Support Group
PO Box 350333
Westminster, CO 80035-0333
Tel: (303)635-1241
Fax: (303)648-6686
Email: [email protected]
Internet: http://www.sjsupport.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Source: http://www.webmd.com