Resources
The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org
Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970-0418
Tel: (973)895-4445
Fax: (973)895-4846
Tel: (800)627-5482
Email: [email protected]
Internet: http://www.sturge-weber.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Vascular Birthmarks Foundation
P.O. Box 106
Latham, NY 12110
USA
Tel: (877)823-4646
Email: [email protected]
Internet: http://www.birthmark.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
National Organization of Vascular Anomalies
PO Box 38216
Greensboro, NC 27438-8216
Email: [email protected]
Internet: http://www.novanews.org
Hemispherectomy Foundation
P.O. Box 1239
Aledo, TX 76008
Tel: (817)307-9880
Email: [email protected]
Internet: http://www.hemifoundation.intuitwebsites.com/welcome.html
Venous Disease Coalition
1075 S. Yukon Street, Suite 320
Suite 320
Lakewood, CO 80226
Tel: (303)989-0500
Fax: (303)989-0200
Tel: (888)833-4463
Email: [email protected]
Internet: http://www.venousdiseasecoalition.org
Source: http://www.webmd.com