Resources
Chromosome Disorder Outreach, Inc.
P.O. Box 724
Boca Raton, FL 33429-0724
USA
Tel: (561)395-4252
Fax: (561)395-4252
Email: [email protected]
Internet: http://www.chromodisorder.org/CDO/
4P- Support Group
131 Green Cook Road
Sunbury, OH 43074
United States
Tel: (740)936-5095
Email: [email protected]
Internet: www.4p-supportgroup.org
Wolf Hirschhorn Syndrome Trust for the UK and Ireland
1 Hawthorne Villas
Holmes Chapel
Crewe, CW4 7AR
United Kingdom
Tel: 08456035338
Email: [email protected]
Internet: http://www.whs4pminus.co.uk
World Health Organization (WHO)
Avenue Appia 20
Geneva 27, 1211
Switzerland
Tel: 41227912111
Fax: 41227913111
Internet: http://www.who.int/en/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Source: http://www.webmd.com