Resources
International Long QT Syndrome Registry
Heart Research Follow-up Program
Box 653
University of Rochester Medical Center
Rochester, NY 14642-8653
Tel: (585)276-0016
Fax: (585)273-5283
Email: [email protected]
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: [email protected]
Internet: http://www.heart.org
Sudden Arrhythmia Death Syndromes Foundation
508 E. South Temple
Suite 202
Salt Lake City, UT 84102
USA
Tel: (801)531-0937
Fax: (801)531-0945
Tel: (800)786-7723
Email: [email protected]
Internet: http://www.sads.org
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/
QTsyndrome.ch
Ronnerweg 2
Nidau, 2560
Switzerland
Tel: 0041794741535
Email: [email protected]
Internet: http://www.qtsyndrome.ch/index.html
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Source: http://www.webmd.com