Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
United Mitochondrial Disease Foundation
8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
United States
Tel: (412)793-8077
Fax: (412)793-6477
Tel: (888)317-8633
Email: [email protected]
Internet: http://www.umdf.org
Lactic Acidosis Support Trust
1A Whitley Close
Middlewich
Cheshire, CW10 0NQ
United Kingdom
Tel: 0160683719
Fax: 01606837198
Organic Acidemia Association
P.O. Box 1008
Pinole, CA 94564
USA
Tel: (763)559-1797
Fax: (763)694-0017
Email: [email protected]
Internet: http://www.oaanews.org/index.htm
Organic Acidaemias UK
5, Saxon Road
Ashford
Middlesex, TW15 1QL
United Kingdom
Tel: 4401784245989
Email: [email protected]
Internet: http://myweb.tiscali.co.uk/priddy/
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: [email protected]
Internet: http://www2.niddk.nih.gov/
FOD (Fatty Oxidation Disorders) Family Support Group
PO Box 54
Okemos, MI 48864
USA
Tel: (517)381-1940
Fax: (866)290-5206
Email: [email protected]
Internet: http://www.fodsupport.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
MitoAction
14 Pembroke Street
Medford, MA 02155
Tel: (888)648-6228
Fax: (888)648-6228
Email: [email protected]
Internet: http://www.MitoAction.org
Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: [email protected]
Internet: http://www.medicalhomeportal.org
Childhood Liver Disease Research and Education Network
c/o Joan M. Hines, Research Administrator
Children's Hospital Colorado
13123 E 16th Ave. B290
Aurora, CO 80045
Tel: (720)777-2598
Fax: (720)777-7351
Email: [email protected]
Internet: http://www.childrennetwork.org
Source: http://www.webmd.com